Tuesday, 18 February 2014

COMING SOON - THE PROMIXX VORTEX MIXER 2.0!

If you thought the PROMiXX Vortex Mixer was cool, you're in for some amazing news.

The wonderfully clever people at PROMiXX have just out done themselves and announced that the PROMiXX Vortex Mixer 2.0 is on it's way
I for one, am quite excited at this news.

The Original PROMiXX Vortex Mixer features a scientifically engineered blunt blade specifically designed to protect the integrity of the micronutrients in your food supplements. The motor is fully and easily detachable and it even had a 100% leak proof sports cap, perfect for when you are on the go! (How annoying is it when no matter how tight you put caps on regular mixers, it still goes everywhere!?) 

So how exactly do you make something that is already awesome, even better? 

How about adding an integrated storage system for up to 100g of your supplements?
Or even make it with durable and aesthetic brushed aluminium?
You know what would be really cool, a Lithium-ion battery AND a USB charging cable.  

Well you've got it. 

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Be one of the first to get your hands on this amazing piece of kit, head on over to their Kickstarter page and if you pledge $40 or more you will receive a PROMiXX Vortex Mixer 2.0 before anyone else!
Come and join the revolution and be part of something cool.

The estimated release is May 2014 and I can assure you as soon as I can get my mitts on one I will do a very thorough review. 

If you can't wait and want to try the Original PROMiXX Vortex Mixer then you can purchase them here at Alpha Nutrition.

Wednesday, 12 February 2014

Heart Problems Solved (Hopefully)

In my last post I mentioned how my heart has been playing silly buggers, and I put it down to my MS. I Promised my nurses I would talk to my GP about it and yesterday I did. 

She gave me good news and kind of bad news. 

The good news is she is pretty certain that it's all being caused by the dose of my circulation tablets being far too high for me and my very low blood pressure. How I hadn't fainted at all I don't know. But all I need is to lower the dosage of the circulation tablets and my heart will level itself out. The bad news is that I'm on complete rest for a couple of weeks until my body adjusts itself. I know it's not really bad news but it means sulking on the sofa for a fortnight while pining for the gym. Something that I focus on and I use to fight back at my MS and all of life's other worries. 

Oh well. 

Blessings x

Sunday, 9 February 2014

Friday, 7 February 2014

MS And Tysabri Latest - Musings. Annoying, Painful Musings.

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I wrote this on the ferry to my infusion this past Tuesday
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"I don't know what my MS is playing at lately. 

My symptoms are going nuts, along with old ones flaring up and even new ones making an appearance. It's making life very tricky for me. New symptoms sometimes means new lesions on the brain but I'm forgetting that thought, telling myself that they were all there before and just deciding to flare up now. 
There's no doubt about it, my MS is getting worse. Much worse. My Doctors and nurses are all aware and are all nodding at Secondary Progressive. But the fact that I have new symptoms and I'm getting much worse brings my Tysabri treatment into question - Whether it's working or not. 
I've had to be very careful what I share with them in fear that they might stop my treatment, as it's not licensed in the UK to treat Secondary Progressive MS. I chatted with one of the nurses about my fears at my last infusion and she told me that they look at it on a case by case basis and I could still be allowed the treatment. All MS gets worse eventually, but it's about slowing it down. Some people thrive on Tysabri and improve, never relapsing again. 
There's no doubt it's working for me. Before I started this treatment I was relapsing over and over. Now after being on it a year I have only relapsed twice. One of which wasn't even a 'true' relapse as it was triggered by infection, the other was at the start of my treatment. 
I've given it a lot of thought lately, perhaps it's time to be honest and not just with my Doctors but with myself too. I kid myself every day about it, telling myself I'm fine. 
But it's only so long I can pretend that I don't need my crutches every other day. 
People close to me have even noticed that I'm getting worse. My heart races in my throat and I'm exhausted suddenly just sat down doing nothing. I dread to think of having one of these episodes when I'm walking around in public as I will fall (not that falling everywhere isn't exactly uncommon) and stress putting even more strain on my heart. Working out? Jesus if I had this while on an elliptical I'd probably end up in a wheelchair. I'm stumbling all over the place, yesterday I even fell backwards twice when I was just standing still folding washing. 
It's starting to get a bit much. Maybe I should tell the truth. I can't keep blaming all of this on stress."

 Well I did it. I told them everything. What my body was doing, how I felt, and all of my fears. My nurse as always was brilliant, putting me completely at ease but we agreed that it's all got to be forwarded to my drug consultant. She is the treatment boss, who decides yes or no.
I feel so much better for sharing it and getting it all off of my chest. 
Some people do go through bad patches of MS and then a couple of years pass and they get a lot better. It's all about phases. And it is still early days on Tysabri, I've been on it a whole year now! The bottom line of it all is that this treatment is doing something positive for me. In my heart I do feel like I'm just in a low phase. Problem is, if there is a hiccup I could stay in the low phase and plummet. 

But we don't think about these things. We just keep going. It's ok to paint on a smile every now and then. The most important thing is to listen to your body, share what you can, accept help and keep positive. Our bodies are breaking apart. Life for us is like the sea, crashing into crumbling cliffs, ripping them down. Our cliffs may fall into the sea, but our souls still stand. 

So let your soul do the smiling for a change :)


Blessings x

Sunday, 2 February 2014

Jaimie Goes Vegan! - An MS Challenge



My latest experiment to see how and if a vegan diet does anything to help my symptoms!

Leave a comment if you yourself find a special diet helps your MS. 
Information and other people's experiences is crucial to finding something that if you try it, might work for you :) 

Saturday, 1 February 2014

All I Need's A Little Time



Gosh it's really blowing a hooley outside. The rain against my bedroom window is almost deafening. How horrid. 
The weather lately as a whole has been awful and it's certainly not doing my mood any good. Saying that, I can't say that I'm not feeling a little better, and these days have mostly been pushing upwards. 
I have taken a lot of time to myself to just be with 'myself'. I feel almost like I'm evolving in some way, more positive, wiser and creative. Trouble is when you go through transitions like this you have to make a conscious effort to get to know the new you. If you don't you'll find that you're clashing subconsciously with this new person and you'll be stressed without even knowing why. 

Coming out of a breakdown can feel like putting yourself back together like a jigsaw puzzle. Slowly picking up pieces and putting them back in place, with some new shiney ones in there too. You really have to force yourself to just 'be' and get to know yourself. Why? Because you are your closest friend, all the way from your birth til your death. 
The most important thing you can do is to look after yourself. Make time for yourself. Check up on yourself. Even treat yourself to a coffee on a cold, wet and windy day just you and yourself getting to know each other. You never know, what you find may surprise you. Have you ever told yourself to be proud of who you are? Because you should, every day. 

As I said (and I hope I don't jinx it) I'm slowly on the up. These days I'm really just trying to keep myself busy doing things that I enjoy. It means that a lot of things are changing around me, but it's all for the better. Routine and planning are helping a lot, also making me feel a bit more productive. 
Hopefully this should lead to my poor neglected blog being busier, and I've even created a new YouTube channel as my old channel was too miss-matched for my liking. You can find it here: www.youtube.com/islandbeachbunny Videos will be up soon so watch this space. 

Blessings x

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